Nolan’s Menkes March raising money for A Rosie Place for Children
SOUTH BEND, Ind.—The first-ever Nolan’s Menkes March on Saturday, June 8 will benefit A Rosie Place for Children, a 10 bedroom South Bend facility that provides respite care for Indiana families.
The march is named after a Granger boy who is battling Menkes Disease.
Nolan Zent was diagnosed with the rare, life-altering disease when he was six-months-old.
Children who suffer from the disease do not produce enough copper and usually do not live past their third birthday.
Nolan’s family is hosting the march at Potawatomi Zoo on Saturday.
“A lot of people are unaware that these children exist and how difficult it can be to raise medically fragile children. Until you live it, you don’t understand what’s going on,” said Stephen Zent, Nolan’s father.
The Zent family chose to donate the proceeds from the march to A Rosie Place for Children so that the facility can continue helping families like their own.
Getting that awareness out there that there are a lot of these children and families in need, it’s place like this that can help and fill that void,” Zent said.
The march will start at 8:30 a.m. on Saturday.